11 Multiple Sclerosis Organizations You Should Know About

8. National Organization for Rare Disorders (NORD)

Suffering from a rare disease for which there is no cure may be lonely sometimes, but the National Organization for Rare Disorders (NORD) works to unify the voices of individuals with these conditions and their families and caregivers so that no one has to fight alone. “For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. We are here to support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases,” according to the organization.

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3 comments

  1. Caroline says:

    Where is NARCOMS? It should be first on the list, I think.

    “NARCOMS is a global registry for Multiple Sclerosis research, treatment, and patient education. The Registry is an active database of over 38,000 persons with Multiple Sclerosis.”

    This organization is linked to the Consortium of Multiple Sclerosis Centers.

    These sites are where the serious work is reflected.

  2. Dennis says:

    Why no mention of Can Do MS, an exceptionally intelligent source of MS education? (MSCanDo.org)

    Why no mention of the MS Cure Fund? (MSCureFund.org)

    Why no mention of MS news and views?

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