Spencer’s MS Story: Waiting 17 Years for an Accurate Diagnosis

Being diagnosed with multiple sclerosis (MS) can be very difficult to deal with, but it’s even worse when you live with the disease for 17 years before being diagnosed — which is exactly what happened to Spencer.

MORE: Eight less common signs of MS you might not know about

Even though he had been experiencing symptoms since his late 20s, Spencer wasn’t diagnosed with multiple sclerosis for 17 years. In this video shared on metaspencer‘s YouTube account, Spencer shares his full story: how he got diagnosed; what the early, persistent symptoms were; and the entire journey from first signs to diagnosis.

MORE: Six quick facts about MS that might interest you

Multiple Sclerosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.


  1. Libbie Frank says:

    Thank you, Spencer! That was a great story. Mine is very similar and I’ve had MS for 30 yrs. There weren’t any drugs when I first learned I had it, but I have chosen to not take the drugs, except for Low Dose Naltrexone, which is not one of the drugs typically prescribed for MS. I’m still walking and without any assistance although I do have some leg weakness. Changing my diet has been a hard, I’m only partially there, but I do believe it can make a big difference in so many ways.

  2. cynthia says:

    great video , Spencer. I have had MS at least 49 years, and was diagnosed 31 years ago….the first neurologist I saw told me it was MS before doing any tests…he said I had all the classic symptoms…peripheral vision ”neon” flashes, numbness in the entire left half of my body ,hypersensitivity ,extreme fatigue….etc.etc.etc. Like you , I have never taken any meds. for my MS .I don’t really trust them. I now have secondary progressive MS and I do take Fampyra to help my walking [ and it really does] and I take oxybutynin so I don’t have urinary ”accidents”.I will soon be going to be assessed at a medical cannabis clinic….I have been having quite severe pain in my legs , especially at night…and spasms. Hopefully the cannabis will help.
    Thank you for sharing your story

  3. This must be a difficult time for you, Spencer. You DON NOT need to take drugs unless absolutely necessary. There are plenty ways to heal yourself. Strongly advise you to take up Terry Wahl’s Protocol (you can purchase the book on Amazon). It’s a miracle. Let me know if you need further advice (kateewingrose@gmail.com).
    Stay strong,

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