The MS load we carry is heavy. Some of us, unfortunately, must carry it alone. But many of us are fortunate to have someone with whom we can share the weight.
It’s National Family Caregivers Month and a new survey shows just how heavy that load can be. Caregivers, it will come as no surprise, are carrying their own problems and needs.
- Nearly half (49%) of unpaid caregivers surveyed have feelings of depression.
- Nearly half (45%) of unpaid caregivers surveyed feel that their physical health has suffered as a result of their caregiver duties.
- Nearly half (45%) of unpaid caregivers surveyed often don’t have time to book or attend medical appointments for themselves.
- 41% of female unpaid caregivers report that being a caregiver has put pressure on their financial situation, as compared to 28% of male caregivers.
- Almost half (47%) of female unpaid caregivers do not feel supported at all by the local community, and a third (33%) of unpaid caregivers do not feel supported at all by their local health system. Just 40% of unpaid caregivers feel supported by their employer in their role as a caregiver.
No surprise there, nor in the depression and health problems that were reported. I am surprised, however, that the percentage of caregivers reporting these problems wasn’t higher.
Caregivers shouldn’t have to go through this alone. Just as there are support groups for MS patients, there are organizations supporting caregivers. They include:
- Caregiver Action Network
- Carers Australia
- Carers UK
- Carers Worldwide
- National Alliance for Caregiving
- International Alliance of Carer Organizations
- Shanghai Roots & Shoots, China
I’ve found some of the best resources for caregivers, however, are the personal blogs that are written by caregivers themselves. Here are a few that I’ve stumbled upon. Not all of these are specific to MS, and some are no longer active, but they all contain good information:
- Healthcare Journey/caregiver
- MS Caregiver Sharing
- The Caregivers Living Room (Australia)
- ArtsieSeph’s Junior Caregiver’s Guide (Young caregiver)
- Caregivingly Yours (A man with lung cancer cares for his wife with MS)
And the National MS Society has published A Guide for Caregivers that’s chock full of good tips.