8. National Organization for Rare Disorders (NORD)
Suffering from a rare disease for which there is no cure can be lonely at times, but the National Organization for Rare Disorders (NORD) works to unify the voices of patients, their families and caregivers, so that no one has to fight alone. “For more than 30 years, we have been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. We are here to support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases,” explain the organization.
Learn more here.